They're usually around my jawline, around my chin, and all over my neck. Actually, I just get 7 or 8 stray hairs at a time, but they're usually very stubbly, wiry and coarse. It's not that I have a beard and mustache. I (female) have the weirdest issue with excessive hairs. But instead of "No Fear," I want it to say "DE NOVO CO元A1" and maybe the date. But I have recently decided that if I get my official diagnosis, I may get my first and only tattoo. They look great on others, but not on me. I have always been pretty much against the idea of tattoos for me. Or maybe there are special considerations or ways to prepare. So I am also wondering if it is dangerous for people with Vascular EDS to get tattoos. I recently learned that people with Vascular EDS cannot donate blood or their organs. NIH hEDS Information, Criteria & Management We cannot verify where the money is going, and to protect all parties, we do not allow these posts. This subreddit does not allow posts asking for financial help. If you want to post memes anytime, check out our sister subreddit /r/ZebraMemes. Any meme submitted as its own post will be removed. Please ONLY post memes into the weekly threads. This is a bannable offense and will not be tolerated. In order to avoid further bullying and harassment, it is now against subreddit rules to make comments regarding the morality of having children with EDS unless OP specifically asks. The decision to have children is an extremely personal one-Ehlers-Danlos syndrome or not. Sharing your failures or successes with treatments is fine. Soliciting or giving medical advice is not allowed in this subreddit. It is best to avoid giving medical advice over the internet in general. NOBODY HERE IS A VERIFIED MEDICAL PROFESSIONAL. Instead of making a "could I have EDS post?," read the resources provided here first! Please remember that only a doctor can diagnose you. The wiki has information on what Ehlers-Danlos syndrome is, the different subtypes, information on pursuing a diagnosis, and more! This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life.Īccess the wiki index here. This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD-diagnosed or waiting to be diagnosed.
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